Blog

Oakley in his 3rd week next week at NAPA – Neurological and Physical Abilitation – centre London – He is progressing incredibly well and seems to be enjoying the challenge of the hours of hard graft day in day out ! What a champ! The combination of all family and friends and public donations during…

Aunty Katherine, uncle Ian and family hosted a fundraising tea party – Thank you to you and your friends so much from us! (Nick, Amy and Oakley). They had 38 guests and put on a special event . “…It was a great opportunity to spread the word about SMA. Many guests were unaware of the…

July 2024 – 2nd trip to Italy to it’s nation’s world-renowned specialist facility: Progettiamo Autonomia (Literal translation ‘we plan autonomy’). Family made changes to fund another trip (costs not shown on here) and thank you to my brother funding Oakley’s Ankle-Foot-Orthotics since shown as an offline donation via Tree of Hope ~£1k). Oakley did well…

Massive well done and huge thanks and appreciation to Steve Thorp who ran the Exeter Marathon on behalf of Oakley, and through his linked justgiving page https://www.justgiving.com/fundraising/manchester-marathon-for-oakley raised at the time of writing £951! with more trickling in post race. Amazing effort fundraising for Oakley and to have to push on through in one of…

The bbc kindly wrote an article about our son’s needs and the start of our virtual atlantic crossing campaign to fundraise for NAPA; £5000 by completing a collective total of 5000km (approx distance Bristol to Boston USA) by any human powered means. Thank you Tree of Hope for the recommendation for journalist Rachel Candlin –…

Our neighbour Richard managed to organise a signed 2023 Treble winning Manchester City F.C. shirt signed by Jack Grealish for local raffle! We were so grateful for this and all the local entrants on our nearby roads. The lucky winner was very happy ! The funds raised were used for Oakley’s at home physiotherapy sessions.

Hugely grateful to the ‘Narberth Nobbler’ a charity who work with organisers of trail running, for donating £1000 raised from one of their events. This came through friend and erstwhile colleagues Amy and Mathew Lewis. This went towards Oakley’s home physio.

This major project created an extended and accessible home for Oakley. We created a new bedroom and bathroom suite in the ground floor extension and made the entire ground floor accessible by widening internal doorways. We created a new external entrance door with level access to the front drive and road and a level access…